Comments on: Free Meditation CD & Report

By: Guy

Guy — Wed, 06 Oct 2010 08:56:43 +0000

I have had ME for 10 years with 3 relapses, and like many others I can see clearly now that ME is a different illness to CFS.

The difference lies in ‘the fatigue’ symptom. This is not my major symptom, and indeed really I do not suffer it per se.

My most obvious symtoms are disturbances to normal organ functioning, and in particular to those with smooth muscle tissues. The other clear sympton is ‘frailty’, which follows on usually after a bout of abnormal muscle spasm (especially in the gut, and pain.

I favour the current trend to refer to ME as ‘Myalgic Encephalopothy’ – rather than ‘itis’.

Stick to the ‘ME’ terminology, folks. It re-affirms constantly the roots and our faith that this illness is not psychiatric in origin.

By: Jeanie Baetz

Jeanie Baetz — Sat, 10 Apr 2010 19:14:41 +0000

I was told 25 years ago that I had developed FMS. I believe that I also have myofascial syndrome too. I live in Canada and treatments for FMS are usually with drugs such as pain medication and SSRI anti-depressants. I have massage treatements often and that helps for a short period. Unfortunately, my pain level has increased since I’ve been experiencing hormonal imbalances due to perimenopause. I used to exercise a lot more, but have found I don’t have the energy to do regular workouts now. I’ve read recently about the connection between growth hormone deficiency and FMS. Adults can receive growth hormone treatment and it is said that it does alleviate a lot of the symptoms of FMS. I do have hope that I will get better and I do have long periods where I don’t have a lot of pain and my sleeping patterns are better. Everyone who is suffering with this disorder, don’t give up ever!! Keep on educating yourself about it and try de-stressing, eating healthfully and keep a positive attitude about life.

By: Tso

Tso — Thu, 04 Feb 2010 05:34:39 +0000

I am a big believer in meditating and guided meditation. I have been meditating for the last 12 years and it has changed my life to the better. Like you, it is much easier now to disengage from myself and see my thoughts objectively.

You did a great job in writing this piece. I combined what I learned from your article and what I read on another site and it has helped me tremendously. I look forward to reading more!

By: Jim

Jim — Mon, 27 Oct 2008 02:22:47 +0000

I just came across this web site. I fell extremely ill 3/2007. Overnight I was unable to function or work for 10 months. I lost 30 pounds in less than 2 months. Eventually severe depression and anxiety kicked in. Than came the IBS. Brain fog, muscles spasms, fasiculations, and lightheadedness followed. I have spent countless time and money at the Mayo Clinic, the U of Minnesota and another esteemed clinic. I was convinved it was MS but 3 different series of EEG’s, EMG’s, MRI’s and other exams have come up clean. All other exams have come up normal with the exception of a 49% ejection fraction (cardiomyapathy). I am a 34 year old, married, father of 2, executive that is really having a tough time bouncing back from whatever happened to me. The depression and anxiety are gone and the IBS is near normal. The fatigue is better but still absolutely there and the spasms/fasiculations are also minimized but there. I wonder if ME or CFS could be a possibility. I want and need my life back.

By: Sleepydust

Sleepydust — Mon, 12 May 2008 01:20:32 +0000

Hi Jeannie

Indeed ME is different to CFS, and both are different to Chronic Fatigue too.

The term ME/CFS does not mean that ME is the same as CFS...

The term ME/CFS is currently being used as an umbrella term to describe the various sub-sets of illnesses - ME and CFS included. The confusion seems to stem partly from the various names, and partly from the assumption that Dr Wessely's 'CFS' is the same as the World Health Organisation's (ICD) CFS. This is, of course, incorrect. They are quite different.

It is very difficult to understand what has become a minefield of politics, but I have tried my best to explain it (with references) in the following pages:

For an explanation on the emergence of the terms 'ICD-CFS' and 'ME/CFS' visit:

http://www.sleepydust.net/ICD-CFS.html

- Why ME/CFS is different to chronic fatigue:

http://www.sleepydust.net/neurasthenia-chronic-fatigue-syndrome.html

- How many researchers and specialists now think that there are sub-types:

http://www.sleepydust.net/sub-types-CFS.html

By: Jeannie McCombs

Jeannie McCombs — Mon, 12 May 2008 00:21:16 +0000

I wholeheartedly believe that ME and CFS are two different illnesses. I was told that I have ME, rather than CFS because I have an abnormal movement disorder called paroxysmal dyskinesia and that is not a symptom of CFS. That psychiatrist from England, Dr. Wessler, back in the 1980’s, I believe it was, and his collegues, had a hand in trying to say ME was simply a psychiatric illness but in dealing with our CDC in Atlanta, couldn’t end up getting away with sweeping it under the rug, so to speak, as a psych. problem, so the CDC ended up saying that CFS and ME were an actual illness but one in the same thing. ME has been being diagnoses and treated since the 1950’s in England, Canada and Australia. A little research will show this. I cannot figure out why so many of you sites dealing with these illnesses keep saying that CFS and ME are one and the same. Research says there is no objective testing for CFS, yet a PET scan or SPECT scan can prove the existence of ME. But since these tests are so expensive, I believe insurance companies paid Dr. Wessler and his co-workers to make up all this nonsense about ME not even being a “real” illness, and then somehow it ended up getting lumped together with CFS. CFS needs its own name, such as post-viral illness perhaps, but does not need to be lumped together with Myalgic Encephalomyelitis. The very name, CFS, takes away from the severity of it. And the same holds true for ME sufferers like myself, getting labled as having Chronic fatigue, like I am “just tired all the time.” Do you have ANY proof that ME and CFS are one and the same illness? I would be most interested in seeing it. I guess you can tell that I am most frustrated by having this illness. I think I am just sick of living with it, period!